Caregiver burden in Parkinson's disease
Identifieur interne : 003104 ( Main/Exploration ); précédent : 003103; suivant : 003105Caregiver burden in Parkinson's disease
Auteurs : Pablo Martinez-Martin [Espagne] ; Maria Joao Forjaz [Espagne] ; Belén Frades-Payo [Espagne] ; Angels Bayés Rusinol [Espagne] ; José Manuel Fernandez-Garcia [Espagne] ; Julian Benito-Leon [Espagne] ; Victor Campos Arillo [Espagne] ; Miquel Aguilar Barbera [Espagne] ; Margarita Pondal Sordo [Espagne] ; Maria José Catalan [Espagne]Source :
- Movement disorders [ 0885-3185 ] ; 2007.
Descripteurs français
- Pascal (Inist)
English descriptors
Abstract
Parkinson's disease (PD) is a neurodegenerative disorder that imposes an important burden upon the patient's caregiver. This study aims at assessing caregiver burden (CB) and analyzing its relationship with sociodemographic, emotional, and functional factors, as well as health-related quality of life (HRQoL). The following measures were applied to 80 patients with PD: the Hospital Anxiety and Depression Scale (HADS); the EuroQoL (for HRQoL); and PD-specific measures (Hoehn and Yahr staging and SCOPA-Motor ADL subscale). Patients' main caregivers completed the HADS, SF-36, EuroQoL, and Zarit CB Inventory (ZCBI). The ZCBI was found to be a valid and reliable measure in the context of PD. There was a significant association between CB and caregivers' HRQoL (r = -0.29 to -0.64). Mental aspects of caregivers' HRQoL and burden were affected by disability and disease severity. The presence of caregivers' depression had a significant negative effect on both CB and HRQoL. The main predictors of CB were caregivers' psychological well-being, patients' mood and clinical aspects of PD (disability and severity), and HRQoL of patients and caregivers. This study underscores the need to consider the impact of PD on caregivers' well-being.
Affiliations:
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xml:lang="en" level="a">Caregiver burden in Parkinson's disease</title><author><name sortKey="Martinez Martin, Pablo" sort="Martinez Martin, Pablo" uniqKey="Martinez Martin P" first="Pablo" last="Martinez-Martin">Pablo Martinez-Martin</name><affiliation wicri:level="3"><inist:fA14 i1="01"><s1>Neuroepidemiology Unit, National Center for Epidemiology, Carlos III Institute of Public Health</s1><s2>Madrid</s2><s3>ESP</s3><sZ>1 aut.</sZ><sZ>2 aut.</sZ><sZ>3 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Madrid</settlement><region nuts="2" type="region">Communauté de Madrid</region></placeName></affiliation></author><author><name sortKey="Forjaz, Maria Joao" sort="Forjaz, Maria Joao" uniqKey="Forjaz M" first="Maria Joao" last="Forjaz">Maria Joao Forjaz</name><affiliation wicri:level="3"><inist:fA14 i1="01"><s1>Neuroepidemiology Unit, National Center for Epidemiology, Carlos III Institute of Public Health</s1><s2>Madrid</s2><s3>ESP</s3><sZ>1 aut.</sZ><sZ>2 aut.</sZ><sZ>3 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Madrid</settlement><region nuts="2" type="region">Communauté de Madrid</region></placeName></affiliation></author><author><name sortKey="Frades Payo, Belen" sort="Frades Payo, Belen" uniqKey="Frades Payo B" first="Belén" last="Frades-Payo">Belén Frades-Payo</name><affiliation wicri:level="3"><inist:fA14 i1="01"><s1>Neuroepidemiology Unit, National Center for Epidemiology, Carlos III Institute of Public Health</s1><s2>Madrid</s2><s3>ESP</s3><sZ>1 aut.</sZ><sZ>2 aut.</sZ><sZ>3 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Madrid</settlement><region nuts="2" type="region">Communauté de Madrid</region></placeName></affiliation></author><author><name sortKey="Rusinol, Angels Bayes" sort="Rusinol, Angels Bayes" uniqKey="Rusinol A" first="Angels Bayés" last="Rusinol">Angels Bayés Rusinol</name><affiliation wicri:level="3"><inist:fA14 i1="02"><s1>Parkinson's Disease Unit, Teknon Medical Center</s1><s2>Barcelona</s2><s3>ESP</s3><sZ>4 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Barcelone</settlement><region nuts="2" type="region">Catalogne</region></placeName></affiliation></author><author><name sortKey="Fernandez Garcia, Jose Manuel" sort="Fernandez Garcia, Jose Manuel" uniqKey="Fernandez Garcia J" first="José Manuel" last="Fernandez-Garcia">José Manuel Fernandez-Garcia</name><affiliation wicri:level="1"><inist:fA14 i1="03"><s1>Department of Neurology, Basurto General Hospital</s1><s2>Bilbao</s2><s3>ESP</s3><sZ>5 aut.</sZ></inist:fA14><country>Espagne</country><wicri:noRegion>Bilbao</wicri:noRegion></affiliation></author><author><name sortKey="Benito Leon, Julian" sort="Benito Leon, Julian" uniqKey="Benito Leon J" first="Julian" last="Benito-Leon">Julian Benito-Leon</name><affiliation wicri:level="3"><inist:fA14 i1="04"><s1>Department of Neurology, Móstoles General Hospital</s1><s2>Madrid</s2><s3>ESP</s3><sZ>6 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Madrid</settlement><region nuts="2" type="region">Communauté de Madrid</region></placeName></affiliation></author><author><name sortKey="Campos Arillo, Victor" sort="Campos Arillo, Victor" uniqKey="Campos Arillo V" first="Victor" last="Campos Arillo">Victor Campos Arillo</name><affiliation wicri:level="1"><inist:fA14 i1="05"><s1>Department of Neurology, University Teaching Hospital</s1><s2>Malaga</s2><s3>ESP</s3><sZ>7 aut.</sZ></inist:fA14><country>Espagne</country><wicri:noRegion>Malaga</wicri:noRegion></affiliation></author><author><name sortKey="Aguilar Barbera, Miquel" sort="Aguilar Barbera, Miquel" uniqKey="Aguilar Barbera M" first="Miquel" last="Aguilar Barbera">Miquel Aguilar Barbera</name><affiliation wicri:level="3"><inist:fA14 i1="06"><s1>Department of Neurology, Mutua de Terrassa Hospital</s1><s2>Barcelona</s2><s3>ESP</s3><sZ>8 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Barcelone</settlement><region nuts="2" type="region">Catalogne</region></placeName></affiliation></author><author><name sortKey="Pondal Sordo, Margarita" sort="Pondal Sordo, Margarita" uniqKey="Pondal Sordo M" first="Margarita" last="Pondal Sordo">Margarita Pondal Sordo</name><affiliation wicri:level="3"><inist:fA14 i1="07"><s1>Department of Neurology, Severo Ochoa Hospital</s1><s2>Leganés, Madrid</s2><s3>ESP</s3><sZ>9 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Madrid</settlement><region nuts="2" type="region">Communauté de Madrid</region></placeName></affiliation></author><author><name sortKey="Catalan, Maria Jose" sort="Catalan, Maria Jose" uniqKey="Catalan M" first="Maria José" last="Catalan">Maria José Catalan</name><affiliation wicri:level="3"><inist:fA14 i1="08"><s1>Unit of Movement Disorders, Department of Neurology, San Carlos University Teaching Hospital</s1><s2>Madrid</s2><s3>ESP</s3><sZ>10 aut.</sZ></inist:fA14><country>Espagne</country><placeName><settlement type="city">Madrid</settlement><region nuts="2" type="region">Communauté de Madrid</region></placeName></affiliation></author></analytic><series><title level="j" type="main">Movement disorders</title><title level="j" type="abbreviated">Mov. disord.</title><idno type="ISSN">0885-3185</idno><imprint><date when="2007">2007</date></imprint></series></biblStruct></sourceDesc><seriesStmt><title level="j" type="main">Movement disorders</title><title level="j" type="abbreviated">Mov. disord.</title><idno type="ISSN">0885-3185</idno></seriesStmt></fileDesc><profileDesc><textClass><keywords scheme="KwdEn" xml:lang="en"><term>Caregiver</term><term>Inventory</term><term>Nervous system diseases</term><term>Parkinson disease</term><term>Quality of life</term></keywords><keywords scheme="Pascal" xml:lang="fr"><term>Système nerveux pathologie</term><term>Parkinson maladie</term><term>Aidant</term><term>Qualité vie</term><term>Inventaire</term></keywords></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en">Parkinson's disease (PD) is a neurodegenerative disorder that imposes an important burden upon the patient's caregiver. This study aims at assessing caregiver burden (CB) and analyzing its relationship with sociodemographic, emotional, and functional factors, as well as health-related quality of life (HRQoL). The following measures were applied to 80 patients with PD: the Hospital Anxiety and Depression Scale (HADS); the EuroQoL (for HRQoL); and PD-specific measures (Hoehn and Yahr staging and SCOPA-Motor ADL subscale). Patients' main caregivers completed the HADS, SF-36, EuroQoL, and Zarit CB Inventory (ZCBI). The ZCBI was found to be a valid and reliable measure in the context of PD. There was a significant association between CB and caregivers' HRQoL (r = -0.29 to -0.64). Mental aspects of caregivers' HRQoL and burden were affected by disability and disease severity. The presence of caregivers' depression had a significant negative effect on both CB and HRQoL. The main predictors of CB were caregivers' psychological well-being, patients' mood and clinical aspects of PD (disability and severity), and HRQoL of patients and caregivers. This study underscores the need to consider the impact of PD on caregivers' well-being.</div></front></TEI><affiliations><list><country><li>Espagne</li></country><region><li>Catalogne</li><li>Communauté de Madrid</li></region><settlement><li>Barcelone</li><li>Madrid</li></settlement></list><tree><country name="Espagne"><region name="Communauté de Madrid"><name sortKey="Martinez Martin, Pablo" sort="Martinez Martin, Pablo" uniqKey="Martinez Martin P" first="Pablo" last="Martinez-Martin">Pablo Martinez-Martin</name></region><name sortKey="Aguilar Barbera, Miquel" sort="Aguilar Barbera, Miquel" uniqKey="Aguilar Barbera M" first="Miquel" last="Aguilar Barbera">Miquel Aguilar Barbera</name><name sortKey="Benito Leon, Julian" sort="Benito Leon, Julian" uniqKey="Benito Leon J" first="Julian" last="Benito-Leon">Julian Benito-Leon</name><name sortKey="Campos Arillo, Victor" sort="Campos Arillo, Victor" uniqKey="Campos Arillo V" first="Victor" last="Campos Arillo">Victor Campos Arillo</name><name sortKey="Catalan, Maria Jose" sort="Catalan, Maria Jose" uniqKey="Catalan M" first="Maria José" last="Catalan">Maria José Catalan</name><name sortKey="Fernandez Garcia, Jose Manuel" sort="Fernandez Garcia, Jose Manuel" uniqKey="Fernandez Garcia J" first="José Manuel" last="Fernandez-Garcia">José Manuel Fernandez-Garcia</name><name sortKey="Forjaz, Maria Joao" sort="Forjaz, Maria Joao" uniqKey="Forjaz M" first="Maria Joao" last="Forjaz">Maria Joao Forjaz</name><name sortKey="Frades Payo, Belen" sort="Frades Payo, Belen" uniqKey="Frades Payo B" first="Belén" last="Frades-Payo">Belén Frades-Payo</name><name sortKey="Pondal Sordo, Margarita" sort="Pondal Sordo, Margarita" uniqKey="Pondal Sordo M" first="Margarita" last="Pondal Sordo">Margarita Pondal Sordo</name><name sortKey="Rusinol, Angels Bayes" sort="Rusinol, Angels Bayes" uniqKey="Rusinol A" first="Angels Bayés" last="Rusinol">Angels Bayés Rusinol</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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